DKMS is an international NGO with 30 years’ experience in fighting blood cancer. Over its three decades of existence, the organisation has registered more than 10.5 million donors and has one of the most diverse donor pools in the world.
By Charmaine Slater
A historic partnership between an iconic South African NPO and its global counterpart is set to change the course for patients with life-threatening blood disorders. This follows the amalgamation of the two organisations.
DKMS Africa, formerly known as The Sunflower Fund, is a donor recruitment centre and stem cell registry. The South African-based stem cell organisation is building an ethnically diverse registry that is representative of all people of African and mixed ethnic descent.
“With DKMS Africa, we are now present in seven countries on five continents. In fact, from the first moment we met the South African executive country director Alana James, we knew we were the perfect match,” Dr Elke Neujahr, the DKMS Global CEO, said.
DKMS is an international NGO with 30 years’ experience in fighting blood cancer. Over its three decades of existence, the organisation has registered more than 10.5 million donors and has one of the most diverse donor pools in the world.
“A donor match could come from anywhere in the world, thus it is important that we expand our international reach. For a second chance at life, we cross borders, collaborate globally and leave no stone unturned to help patients, regardless of their geographic location. “Every patient deserves that chance. Only together we can make a big impact in the lives of patients with blood disorders in South Africa and across the globe,” Neujahr said.
For many patients diagnosed with blood cancer or a life-threatening blood disorder, such as leukaemia, thalassemia or sickle cell disease, their only hope of survival is a blood stem cell transplant from a matching donor.
Only one-third of patients find a matching donor in their own family. The majority, therefore, depends on an unrelated donor. In South Africa, every five minutes someone is diagnosed with a blood disorder.
“Our mission remains to give South African blood cancer patients and patients across the continent a second chance at life. Already, our partnership with DKMS has born great benefits to our operations and has greatly boosted our capacity. “We look forward to benefiting from DKMS’s wealth of expertise in the field of science and research, and in creating awareness,” said James.
She added that people of African origin have unique tissue typing/DNA and are severely under-represented on the global database.
“In respect, South Africa’s rainbow nation is at a distinct disadvantage, requiring a large pool of prospective donors.”
Each new donor registering with DKMS Africa is typed at high resolution for a wide selection of genetic markers. This selection is made possible by the cost-efficient, high-throughput, next-generation sequencing workflow as implemented by the DKMS Life Science Lab.
“The reason for doing this is simple: to provide the most efficient and detailed donor selection process for transplant and search coordinators around the globe and to ensure every patient in need of a transplant is able to find the most suitable donor as quickly as possible. “The most important part of the partnership is that it centres the patient at the core of all operations,” said James.
Originally published at Brakpan herald